1 Dementia and related disorders affect the suffer- minimal standards of care for people with dementia , ers’ ability to perform activities of daily living and the improvement of access to diagnosis and treat- 2 3 to make appropriate decisions about various issues ment , ethical issues related to research in dementia , relevant to their life. While there is no disagreement the problems related to severe dementia, stigma and about these facts there is little clarity and even less social exclusion of people with dementia, assessment consensus about the ways in which competence to of outcome of treatment of dementia and the asse- make decisions should be assessed in daily practice ment of competence of people with dementia. The – nor is there agreement about the levels of compe- work to develop consensus on the latter subject lead, tence at which it is in the best interest of the people inter alia to the production of this volume. with dementia to have a guardian and receive legal In its work the EDCON Steering committee - protection against abuse and other mistreatment. lects areas on which it will concentrate and desig- In daily clinical practice there is a large heterogene- nates a coordinator for the work on each of those.
Comprehensive overview of different aspects of the competence assessment in dementia
Neuropsychological, medical, ethical and legal perspectives
Written by European experts in this field
Introduction: Why has competency assessment become more important? Development of the Consensus statement EDCON Consensus: Assessment of Competence Neuropsychological assessment (Pasquale Calabrese) Brain structures involved in dementia (Matthias Brand and Hans J. Markowitsch) Medical factors interfering with competence in dementia (Maria E. Soto and Bruno Vellas) Drugs that affect competence (Conor O’Luanaigh and Brian Lawlor) Who decides who decides? Ethical perspectives on capacity and decision-making (Deborah Bowman) Are legal systems in Europe fit for the dementia challenge? Approach of the Council of Europe (Nicole Kerschen) Testamentary and financial competence issues in dementia (Konstantinos N. Fountoulakis and Katerina Despos) Assessment of competency and advance directives (Julian C. Hughes) Informed consent in dementia research (Anco vd Vorm and Marcel GM Olde Rikkert) Assessment of fitness to drive, possession of professional drivers’ license, possession of firearms, and pilot’s certificate in clients with dementing conditions (Kurt Johansson and Catarina Lundberg) Practice of competence assessment in dementia in Europe: Austria, Denmark, Finland, France, Germany, Greece, Hungary, Ireland, Italy, Netherlands, Norway, Poland, Portugal, Romania, Spain, Sweden, Switzerland, Czechia, UK.-