This is a resource for reflection on the nature of dementia, particularly its spiritual dimension and the implications of that for Churches and other faith groups. Here is a long overdue resource for reflection on the nature of dementia, particularly its spiritual dimension and the implications for Churches and other faith groups. A practical focus offers not only a critique of areas for future research and development in the field of dementia, but also directs the reader to further resources. The Leveson Centre brings together for study, reflection and the exchange of ideas and information those who believe that older people should not be considered passive recipients of care, but as valued and cherished members of society, who can inform and enrich the lives of others. In particular the Center is developing an understanding of spirituality as lived by older people and aims to support them to express their spiritual awareness. Contributions from distinguished and experienced practitioners in the front line of dementia research and care are here given a context and an overview by the Director of the Foundation, to provide a resource for reflection and practice.
Introduction: James Woodward, Director of the Leveson Centre for the Study of Ageing, Spirituality and Social Policy; Part I: What is dementia?; Overview and introductory material, including contributions from Kate Read (Director of Dementia Plus), Patricia Higgins and Richard Allen; Part II: The pastoral and spiritual needs of people with dementia; Theological reflection and practical response, including contributions from Brian Allen, Alison Johnson, Patricia Higgins and Richard Allen; and a relative's perspective from Judith Alford; Part III: Quality of life for people with dementia; Communication and meaningful relationships; the survival of faith; the role of reminiscence in retaining personhood; the gifts we bring; a role for churches; with contributions from Margaret Anne Tibbs, John Killick, Gaynor Hammond and Sally Knicker; Part IV: Worshipping with people with dementia; Principles and practical considerations; the application of this philosophy to other faiths; communication tips (contributions from Higgins & Allen; Chris Crosskey); Part V: A good death for people with dementia; Palliative care; dying at home; 'The long goodbye'; A Good Death (with contributions from Katherine Froggatt, Adrian Treloar, Margaret Goodall and Beatrice Godwin); Overview and conclusion: James Woodward (including an examination of the SPECAL approach pioneered by Penny Garner); Appendix: Resources and further reading.