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Caring for Children with Special Healthcare Needs and Their Families
A Handbook for Healthcare Professionals
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Main description:

Caring for Children with Special Healthcare Needs and Their Families: A Handbook for Healthcare Professionals provides a guide for addressing the challenges of providing optimal general and routine care for the special needs population.  More than just caring for the patients, the text stresses the importance of caring for their families as well.


The book begins with chapters on common aspects of this population, including physical or sensory disabilities and developmental and learning disabilities.  Subsequent chapters expound on more specific topics related to communication, mobility, emotional issues, quality of life, and end–of–life.


Caring for Children with Special Healthcare Needs and Their Families is a must–have book for family  and pediatric nurse practitioners, registered nurses, healthcare technicians, physician assistants and social services professionals who see these patients regularly as part of their daily patient load.


Back cover:

Caring for Children with Special Healthcare Needs and Their Families: A Handbook for Healthcare Professionals provides a guide for addressing the challenges of providing optimal general and routine care for the special needs population.  More than just caring for the patients, the text stresses the importance of caring for their families as well.


The book begins with chapters on common aspects of this population, including physical or sensory disabilities and developmental and learning disabilities.  Subsequent chapters expound on more specific topics related to communication, mobility, emotional issues, quality of life, and end–of–life.


Caring for Children with Special Healthcare Needs and Their Families is a must–have book for family  and pediatric nurse practitioners, registered nurses, healthcare technicians, physician assistants and social services professionals who see these patients regularly as part of their daily patient load.


Contents:

Contributors xv

1 Introduction 3


Linda L. Eddy


2 Common Physical or Sensory Disabilities 9


Mary C. Sobralske


Cerebral Palsy 11


Diagnosis, etiology, and risk factors of CP 11


Presenting signs and symptoms of CP 13


Classification of CP 14


Prognosis and complications 15


Common pharmacologic and non–pharmacologic therapies 16


Role of nursing 18


Roles of occupational and physical therapy 19


Roles of speech and language therapy 20


Roles of social work and psychology 21


Transition to adulthood 21


Neural Tube Defects (Myelodysplasia/Spina Bifida) 23


Etiology 23


Presenting signs and symptoms 24


Prognosis 25


Common pharmacologic and non–pharmacologic therapies 25


Roles of nursing 27


Occupational and physical therapy 27


Speech and language therapy 28


Social work and psychology 29


Transition to adulthood 29


Muscular Dystrophy 29


Etiologies of muscular dystrophy 30


Presenting signs and symptoms 30


Prognosis 31


Common pharmacologic and non–pharmacologic therapies 31


Roles of nursing 32


Occupational and physical therapy 33


Speech and language therapy 33


Social work and psychology 34


Traumatic Brain Injury 34


Etiologies 34


Presenting signs and symptoms 34


Prognosis 35


Common pharmacologic and non–pharmacologic therapies 35


Roles of nursing 35


Occupational and physical therapy 36


Speech and language therapy 36


Spinal Cord Injury 36


Etiologies 36


Prognosis 37


Presenting signs and symptoms 37


Common pharmacologic and non–pharmacologic therapies 37


Roles of healthcare providers 38


Occupational, physical, and speech therapies 40


Social work and psychology 40


Children with Deafness and Hearing Impairment 41


Etiology of deafness 41


Presenting signs and symptoms 42


Prognosis 43


Common pharmacologic and non–pharmacologic therapies 43


Role of nursing 44


Occupational and physical therapy 45


Speech and language therapy 45


Social work and psychology 46


Children with Blindness and Visual Impairment 46


Etiology 47


Presenting signs and symptoms 47


Prognosis 48


Common pharmacologic and non–pharmacologic therapies 48


Role of nursing 48


Occupational and physical therapy 49


Speech and language therapy 50


References 50


Online Resources 54


3 Common Developmental/Learning Disabilities 57


Linda L. Eddy


The Child with Attention Deficit/Hyperactivity Disorder 59


Definition and presenting signs and symptoms 59


Etiology 59


ADHD in preschoolers 60


ADHD in school–aged children and adolescents 60


Psychopharmacologic management of ADHD 61


Psychotherapeutic/behavioral management of ADHD (NIMH, 2008) 62


Application to nursing and multidisciplinary practice 63


The Child with Intellectual Disability 63


Definition and presenting signs and symptoms 63


Prevalence of intellectual disability 63


Etiology 64


Diagnosis 64


Down Syndrome as Exemplar of Intellectual Disability 65


Application to clinical practice 66


The Child with An Autism Spectrum Disorder 66


Definition and presenting signs and symptoms 66


Prevalence of ASDs 66


Diagnosis 67


Application to clinical practice 68


MIA A Child with Down Syndrome 68


References 69


4 Caring for Children with Feeding and Communication Differences 71


Lisa Lyons


Overview of Early Feeding Skills 74


Developmental feeding milestones: Gestational period through age 7 74


Overview of Early Communication Skills 76


Developmental communication milestones infancy through age 7 76


Screening of Early Feeding and Communication Skills 78


Impaired feeding skills 78


Impaired communication skills 80


Referral and Management: Audiologists and Speech–Language Pathology Professions 83


References 85


5 Caring for Children with Mobility Differences 87


Jeannine Roth


What Is Mobility? 89


The International Classification of Functioning, Disability and Health (ICF) 89


Participation and Functional Ability 90


Assistive technology 93


Gait analysis 94


What Can Nurses do to Help Children with Disabilities? 94


Conclusion 95


References 95


6 Caring for the Child with Special Social and Emotional Needs 97


Sheela M. Choppala–Nestor with Portia Riley


Introduction 99


Structure of this Chapter 99


Etiological Theories 99


The Process of Child Assessment and Intervention 101


The salience of rapport building to the process 101


Systematic data gathering 102


Analysis of data gathered 104


Intervention 106


The Interdisciplinary Team: A Critical Aspect of the Intervention 107


Case Reviews of Select Disorders 107


Autism Spectrum Disorders (ASDs) 107


Social phobia 109


Anorexia nervosa 110


Major depressive disorder 111


Other Conditions 113


Attention deficit and hyperactivity disorder 113


Substance abuse 113


Post–traumatic stress disorder 114


Conclusion 114


References 114


7 Legal and Regulatory Issues 117


Ginny Wacker Guido


Introduction 119


Children with Disabilities and the Law 120


Individuals with Disabilities Educational Act 120


No Child Left Behind Act 123


Americans with Disabilities Act of 1990 125


Ethical Issues in Caring for Children with Disabilties 126


Laws Affecting the Education of Disabled Children and the Healthcare System 128


Conclusion 130


References 130


Resources for Parents 131


8 Use of Theories to Guide Practice 133


Linda L. Eddy


Individual Theories 135


Physical growth and development 135


Erikson s theory of psychosocial development 135


Piaget s theory of cognitive development 138


Family Theories 139


Family life course perspective (developmental family theory) 140


Systems theory 141


Basic systems terminology 141


Family ecological theory 142


Terminology 142


Resources 143


Family assessment guidelines 143


Family genograms and ecomaps 144


References 148


9 Enhancing Quality of Life For Children with Special Healthcare Needs 149


Linda L. Eddy


Quality of Life Defined 151


Decreasing Pain 152


Pain assessment 152


Pain management in children with special needs 154


Pain assessment and management specific to children with special needs 154


Decreasing Fatigue 155


Resources 157


References 157


10 Impact on Family and Increasing Family Well–Being 161


Linda L. Eddy


Family Well–Being 163


Subjective Well–Being in Parents of Children with Disabilities 164


Linking Family Well–Being to Child Well–Being 166


Family Diversity and Well–Being 167


Making a Difference: Family Interventions 168


Culturally sensitive interventions 168


Flexible interventions 169


References 170


11 Public Health and School Health Nursing of Children with Special Healthcare Needs 173


Phyllis Eide


Community Health Nursing with Children with Special Health Needs 175


Public Health and Children with Special Health Needs 175


Public Health and Community Health Programs Serving this Special Needs Population 176


Community Health Nursing Roles with Children with Special Health Needs 178


Case Management with Children with Special Health Needs 180


Evidence–Based Home Visiting Programs for Children with Special Health Needs 183

The Child with Special Needs in the School Setting 185


Conclusion 187


References 188


12 End–of–Life Care for Children with Special Needs and Their Families 191


Janet A. Lohan


Children s Understanding of Death 193


Difficult Conversations About Death and Dying with Children and Their Families 201


Providing Crisis Intervention for Families and Peers After a Child Dies 208


Resources 216


For parents 216


For children 217


For caregivers 217


For parents 217


For children and adolescents 218


References 218


13 Assessment, and Development of an Interprofessional Plan of Care 221


Nancy Lowry and Patricia Shaw


The Assessment Process 224


Preparing for your visit with the family 224


Practice tips: Finding reliable information on the Internet 225


Cultural considerations and the use of interpreters 226


Practice Tip: The following tips can be useful when working with an interpreter:(Lipson & Dibble, 2005; CaCoon Program Manual, 2012) 227


Family engagement Getting to know the family and child 228


Practice Tip: Strategies to facilitate an effective relationship with families 229


The assessment process 230


Common issues in children with special needs 231


Developing a Plan of Care 235


Key components of a care plan 235


Role of the care coordinator in developing and carrying out the plan of care 235


Example of a problem and possible interventions 236


Documentation and the use of electronic health records 237


Practice tip: What to include in the EHR 238


Documentation of care coordination activities 238


A note about electronic health records (EHRS) 240


Other Recommended Resources 241


References 241


Other Recommended Readings 242


Index 245


PRODUCT DETAILS

ISBN-13: 9781118517963
Publisher: John Wiley & Sons Ltd (Wiley–Blackwell)
Publication date: April, 2013
Pages: 232
Dimensions: 172.00 x 244.00 x 10.97

Subcategories: Nursing, Paediatrics and Neonatal

MEET THE AUTHOR

Linda L. Eddy, Ph.D., RN, CPNP, is Associate Professor for the College of Nursing at Washington State University in Vancouver, Washington, USA.