Main description:

This book identifies the various ethical challenges that arise in pediatric hematology/oncology and provides the necessary tools to overcome these challenges. Aiming to expand upon and strengthen providers' knowledge and experience in pediatric health care ethical issues, the text positions providers to be beneficial resources to faculty, staff, patients, and families within their institution. It presents a multidisciplinary approach to sound ethical practices that is necessary to effectively care for these patients and their families. The book reviews the principles of ethical decision-making, the unique difficulties in using children as research subjects, common ethical conundrums involved in providing end-of-life care, and general moralities of professional practice.
Written by experts in their fields, Ethical Issues in Pediatric Hematology/Oncology is an innovative and valuable resource for clinicians, practitioners, and trainees who work in the field of pediatric hematology/oncology.

Contents:

I. Introduction to Ethics in Pediatrics
1. Ethical Principles in the Practice of Medicine / Review of Laws and RegulationsPerry Ann Reed, Tessy Thomas
II. The Ethics of Everyday Clinical Encounters
2. Communicating Prognosis at Diagnosis and Relapse or Progression Brittani K. Seynnaeve, Scott H. Maurer, Robert M Arnold
3. Managing Conflict When There's Disagreement in Care Between Medical Providers, Caregivers, and/or PatientErnest Fruge, Michael Sprehe, Laura Loftis, Melody Brown-Hellsten, Courtenay Bruce
4. Unique Considerations for Adolescents and Young Adults Deena Levine, Liza-Marie Johnson
III. Ethical Issues Surrounding Children in Research
5. Ethical Principles in the Practice of Medicine Ryan R. Nash, Mark J. Wells
6. Ethics in Genetic and Genomic Research Amy L. McGuire, Stacey Pereira, Amanda Gutierrez, Mary Majumder 7. When Cure is not the Goal: Ethical Issues Surrounding Early Phase Research Bryan Sisk, Eric Kodish
8. Advance Care Planning Allison Caldwell, Melody J. Cunningham, Justin N. Baker
9. Symptom Assessment and Management across the Cancer TrajectoryMelody Hellsten
10. Intercultural Competence and Communication Over Language Barriers Pernilla Pergert, Elisabet Tiselius