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Living with HHT
Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia
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Main description:

Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess. Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible. Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families.
This guide is also essential for health professionals seeking more information about this underdiagnosed disease.


Contents:

Acknowledgments
Introduction
Part I
1. Diagnosis
2. The Trouble with Telangiectasias
3. HHT's Hidden Dangers
Part II
4. Taking Care of Yourself
5. Taking Care of Your Family
6. Beyond the Family
Part III
7. Frontiers in HHT Research
Notes
Glossary
Resources
Index


PRODUCT DETAILS

ISBN-13: 9781421423906
Publisher: Johns Hopkins University Press
Publication date: January, 2018
Pages: 160
Dimensions: 152.00 x 229.00 x 10.00
Weight: 272g
Availability: Available
Subcategories: Diseases and Disorders, Genetics

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